Monday, November 16, 2009

Dear Friends

Dear, Dear friends...Sorry it has been so long since I have blogged. I haven't been feeling up to par due to my urinary tract infections. I am getting so sick of being sick. It makes me beyond uncomfortable and very depressed. That is why i haven't called much. On a brighter side, I still am fighting like crazy to beat this tone thanks to steve and hollys hard work. For fun, I started driving the truck. I can do it. It was so exciting. I still don't want to drive where there is a lot of trafic. I am afraid after the fall. I have a lot of fears i'll have to overcome. Gene is coming out next week to help out. Steve's mom needs an operation. It will be a good test to see how well he can cope with my body. I want to come home soon but until i can handle this pain i have to stay here. I am seeing a doctor tomorrow to see if there is some medicine i can take to help me out. I am starting to use canes to walk instead of the walker. It is so much easier for me. Steve has been working realy hard to get my etsy store up and working so please forward it along to all our friends. I like to work when I can.

Update: (Steve's writing now) Pinky's made 3 days without significant pain. That's a really big deal for her. Her current UTI is responding to antibiotics now and we will begin a preventative measure when she's all cleared up. The doctors and all of us have strong hopes this will prevent the frequency of the UTI's. More than half of her battle has been overcoming the Tone which greatly increases when she has any sort of infection or really any irritation at all. She works really hard and makes truly incredible progress when all is well. When it's not, it's not and we focus most efforts on pain management and although she continues to work while sick, the Tone really hinders all efforts. It's a stubborn thing. The past few days have been amazing. It seems the new efforts to to tackle the tone may be paying dividends. I'm keeping my fingers crossed and remain optimistic. We were able to adjust her occupational therapy exercises today as her body was different than it has a very good way. Her muscle position literally changes when things improve. She completed other exercises that were simply out of the question just days ago. And she's a really good driver.

A quick note to all of you supporting Pinky's efforts. Thank you, Thank you. I can't think of a better spirit to be helping. She has incredible will and gives it her all always. She inspires me daily and all of ya'lls thoughts and prayers inspire me as well. It's not always easy to keep people close to your hearts when they're away, so for all the die hard Pinky supporters, a big hug and thank you. I see your letters weekly and it amazes me and in many ways gives us all the strength and fortitude that's neccessary. It's easier when you're caring for angels.

Regarding the etsy site: It's up and running at We are adding new things every chance we get. Please take a look and let all of her friends know. There is some pretty fun stuff there.


  1. Thanks Pinky & Steve for the update! I always worry when it's been ages sine your last update!!! I've got a HUGE package coming your way!!! We love you ALL!!!

    Maura & the boys



  3. Hi Pinky
    Ordered cards and coloring book on etsy yesterday. They look absolutely wonderful. Can't wait to see them "in person."

    You continue to amaze and inspire me. Thoughts and prayers are with you and your family.

    Jane Lux

  4. Hi Pinky,

    I had lost this link - but found it again.

    Hope you all have a Happy Thanksgiving - we miss you in Red Bank

    Ellen Davis

  5. Hi Pinky
    You are always in our prayers!! We are so proud of your accomplisments! You are surrounded by angels!! Keep up the good work! We miss you so!
    Your website is great! I have some work for you so keep it going girl! Enjoy your Thanksgiving!
    God bless you and your children!
    Rosanna &Ken

  6. Hi Pinky! Been thinking of you but havn't been feeling well - have made several trips to the Emergency Room. Doctor finally gave me a heart monitor to wear for a couple of weeks to see if they can isolate my problem. I spoke to Gene yesterday and he gave me an update.

    Keep up the good work. Will try and check out your website tonite (my computer at home was dead too....just got it back!)

    Love, Laura

  7. Hello Pinky! I am always encouraged and inspired in my own life by all that you manage to accomplish and face everyday. I am so happy for you and all of your strides to get closer to being able to come back to NJ. Wow! Driving? That is so cool. That must feel very freeing. I hope you and Holly had an awesome Thanksgiving. You are all in my prayers. You are doing a great job, keep on keepin'on! Love, Melanie, Dave, Alex, Jude & Max woof!

  8. Hello Pinky- I hope your Christmas was Merry and Bright! We had a white Christmas this year. I went sledding with Alex down Tower Hill on Christmas eve. It was really magical! Dave and I are taking the boys into the city tomorrow. It is the first time for both of them. Jude is a train fanatic. I think the train ride will blow his mind! We are going to take them the Museum of Natural History. Did you ever see the movie Night at the Museum with Ben Stiller? All of the displays come to life at night in The Museum of Natural History. So Alex is excited to go and see a dinosuar come to life! We then will go to lunch in Times Square at the Hard Rock. The day of excitement is our Christmas gift from Dave's mom. We are looking forward to seeing the Christmas decorations in the city as well. Hope to see you soon. Have a happy and blessed New Year! Love, Melanie, Dave, Alex, Jude and Max woof! ps-Hang in there, you will be back before you know it! BIG HUG!!