Tuesday, August 25, 2009

Hello Pinky's followers,

I(Beth) am back in the ABQ, ready to give an update on the progress I see. As you all know Pinky had a couple of pretty rough weeks with her sprained ankle,but she has turned the corner for the better. Since I left she has been working hard on getting more stamina with her walking, when I left she needed a long board between her feet so that she wouldn't trip herself, and since her hands really didn't have much strength she needed a walker that could go under her elbows. She only could go about 150 feet then she would get light headed and winded. Now she doesn't need a board which is easier on Holly's knees, since she would be the one who was keeping it in place. She also has a low walker now since her hands are strong enough to hold her weight, they still get a little soar but she does it anyway. Pinky can go up and down the stairs at the rehab, she does this with a helper holding her but soon I am hoping she will do it alone. Also as you all know Pinky loves and needs to be in the pool, when I left she needed a life-vest, now she doesn't and she is working on walking in the pool without any walker, if she falls she knows she will not get hurt.
Pinky is getting antsy without working, so I think she is ready to do some animal portraits so get ready to send pictures out, you will be able to get them back in time for Christmas presents.
Hope you all are doing well in your lives,
Beth, (Pinky,s oldest daughter)

Friday, August 14, 2009

Pinky, You look GREAT!




Hi all,

Things have been going pretty good here at RR. I say pretty good because Pinky is making good progress, but unfortunately the TONE monster has returned. Tone has been visiting for a few weeks now and we're all sure that everyone knows a 3 week visit is pushing the limits of hospitality, so we all expect that Tone is on the way out. Tone, by the way, is increased muscle tone to the point where it's not helpful. For example, when you and I lift a leg or arm, we contend with gravity only for the most part. Pinky is overcoming not just gravity, but the resistance of the increased tone within the muscle. She must move this weight first and then do whatever she's doing. It's super frustrating for her because she knows that without it, things would come easier and because it's uncomfortable at best and at worst resembles a charliehorse throughout the body for extended periods. Not fun.
Ok, now the good stuff. She cranked out 300 steps on the stairstepper: beginning with 20 and then 50 and then 70. That's day one. The next day, she stepped up with a bit of help and cranked out the 300. Topping off day one's success, she climbed a flight of stairs. Mean hospital, weird corridor stairs. 12 steps to a landing and then 13 more to the top. She needed a little help for the last run up. Regardless, STAIRS! IvyRose has set up an electrical stimulation program that we do on our own. Ivy has allowed us permission and guidance to use the machine, so we set aside some extra time during our day at the Rehab and have been been seeing some improvements in her hands.
It's a tough road and demands grit. The Pink Lady has grit. She battles for every inch and calls upon some unseen source for patience and fortitude the likes I doubt many of us have. Some days an inch is lost to be fought for again. She has many inches now and many more to gain. We all give thanks to the many wonderful people in our lives and the many we continue to meet. The people here and there have been exemplar and for some bad luck, it's pretty damn good.