Saturday, June 20, 2009
What's Pinky Been Doing?
A typical day in Pinky's world:
"Family." Pinky's up and usually calls out, 'family,' to let us know she's awake.
10:00 a.m -11:00 a.m:
Morning hygiene and phone calls back to Jersey and Gene.
11:00 a.m-12:00 a.m:
Stretching regiment and Bonnie Hunt on the T.V.
12:00 p.m-1:00 p.m.:
Usually Pinky has some snacks and we drive to rehab.
1:00 p.m-6:00 or 7:00 p.m.:
Depending on the day, Pinky is either working with her Physical Therapist and Occupational Therapist or working out at home. In between, we run whatever errands we have. Pinky has begun going into the grocery store to pick out her own food. It turns out she's a great driver of the big 'phat' electric carts with the baskets attached.
At some point during this time, we usually go swimming for an hour or so and have a shower at the rehab center. Most of the pool time is spent working out and fine tuning mechanical skills necessary in walking. We try to allow her some free time to visit and swim around. She's a hard worker though, and rarely takes us up on it. She does, however, really enjoy the pool and the independence it affords. If time allows and she's feeling good, we take advantage of some of the equipment the rehab center has and we work out on our own.
7:00 p.m -9:00 p.m.:
Like everyone else, we normally have dinner and try to veg out with the T.V.: usually, a network series rented from netflix or a movie and who knows what's for dinner.
9:00 p.m-10:30 p.m.:
It's bath time at R.R. Pinky usually gets into a soaking tub around 9 or 9:30 and hangs out for an hour or so at about 99-100 degrees. Of course, being R.R., we have T.V. available in the spa room, so she normally continues the movie while in the tub.
10:30 p.m-11:30 p.m.:
Once again, like most everyone else, we prepare for bed with many nightly rituals.
11:30 p.m.- 10:00 a.m.: Pinky's in Pinky land, usually dreaming of kicking it with Bonnie Hunt, or doing some light carpentry work building herself a house. Some nights she plays with Jack and Will in her dreams. Other nights she paints or drives her car around town. Tonight, who knows what Pink will be up to....
Some days are different than others. But that's pretty much the routine.
The weekends are different, but she continues to work out albeit, perhaps a bit of a lighter work out. We try to have some fun on the weekends, inviting friends over for Pinky parties or going out to the movies or for snacks. Holly and I fear that we're not as much fun for her as all of you guys in Jersey, but we manage to laugh a lot and we have a pretty good time.
As for her pain management, she's been doing really well. The soaking tub and pool really seem to help with the spasms as long as the water is warm: at least 90 degrees to swim, with 92-94 being ideal and usually around 100 degrees for the soak. When she does have significant pain, the routine changes and revolves primarily around management and dismissal of the evil spasms and tone. Otherwise, we're kicking it and rocking out at R.R. SK